Abstract: This interactive, three-hour workshop will describe best practices and offer practical guidance about how to innovate and enable collaboration to accelerate progress in biomedical and clinical informatics and health systems research. Intended for all career stages and organizational settings, the hands-on session is based on the experiences of leaders of the EDM Forum, which evolved from 11 separate AHRQ-funded grants to a network of more than 4,000 members, including two communities of practice; an online, peer-reviewed, open access journal, and more than 400 freely accessible analytic products (e.g., issue briefs reports, peer-reviewed manuscripts) and resources (e.g., webinars, toolkits).

Institutional barriers to shared governance and data sharing can slow or prevent collaboration. Perhaps one of the most distinctive aspects of the EDM Forum community has been its commitment to work together to solve some of the most pervasive issues in health systems by viewing those issues as shared challenges. Using this collaborative approach, methods, ensuing data, and corresponding analytics, code, and tools become transparent, re-usable, and cumulative in their impact.

In the first hour, presenters will showcase three types of innovative tools that enable collaboration, including: CIELO, an open science platform for sharing health analytics data and code; Data Analytics for a Learning Health System (DALHS), a community of practice for researchers embedded in health care delivery systems; and PROACTIVE: Patient Reported Outcomes (PROs) Implementation Toolkit, a collection of best practices and tools for inclusion of PROs in research and clinical practice.

After these opening presentations, you will have an opportunity to meet with the presenters in groups for one hour to discuss your work in progress and to learn how they were able to cultivate spaces of innovation and collaboration. The final hour’s discussion will take place in different small groups based on shared challenges identified by participants.

Learning Objective 1: Explain the emerging culture of team science and collaboration in health research and informatics, including the landscape of current collaborative tools and initiatives in informatics and related communities.

Learning Objective 2: Identify cultural and organizational barriers to successful collaboration.

Learning Objective 3: Articulate how collaboration and sharing across health systems and sectors can enable increased accessibility and speed of the flow of information from funded research to policy and practice.

Learning Objective 4: Identify appropriate and innovative strategies for collaborating within and across institutions or stakeholder groups.


Margo Edmunds (Presenter)

Philip Payne, Washington University in St. Louis, School of Medicine
Sarah Greene, Health Care Systems Research Network
Patricia Franklin, University of Massachusetts of Medical School

Presentation Materials: