Abstract: Networks have emerged to provide infrastructure including technology and data access to support person-centered care and precision health. Consumers are willing to electronically share genetic and health data but factors such as trust and purpose may moderate their willingness. This national, random digit-dial survey (n=1504) showed greater trust in healthcare and educational organizations accessing health data than national health agencies or companies. Respondents are more willing to share health data for research than genetic data.

Learning Objective 1: To describe consumers' attitudes about willingness to participate in research with respected to sharing of health and genetic data.


Katherine Kim (Presenter)
University of California Davis

Lucila Ohno-Machado, University of California San Diego

Presentation Materials: