Description

Abstract:
The National Patient-Centered Clinical Research Network (PCORnet) is a distributed network-of-networks, where partners transform data from electronic health record (EHR) and claims data sources into a Common Data Model. In order to ensure that the underlying data are suitable for use in network queries, PCORnet employs a robust data characterization process. The tools and processes that support PCORnet are not static, however. They are constantly being refined in response to stakeholder needs as well as the findings from analytic queries and characterization results. This panel will describe the Learning Cycle that informs the activities of the PCORnet Distributed Research Network Operations Center (DRN OC) and will highlight the relationship between the PCORnet CDM, the Data Characterization process, the findings of the PCORnet Demonstration Projects, and downstream analytical tool development. In addition, the panel will discuss how all of these findings are communicated out to network participants and other stakeholders. Attendees will gain an understanding of why these components are all necessary to the successful operation of a distributed research network, and recognize how similar Learning Cycles can be used to improve the quality and reproducibility of any network’s research.

Learning Objective 1: Attendees will gain an understanding of why a Common Data Model, data characterization routines and a feedback cycle that uses results from queries and studies to influence analytical tool development are all necessary to the successful operation of a distributed research network

Learning Objective 2: Attendees will gain an understanding of how the Learning Cycle can be used to improve the quality and reproducibility of any network's research.

Authors:

Keith Marsolo (Presenter)
Cincinnati Children's Hospital Medical Center

Laura Qualls (Presenter)
Duke Clinical Research Institute

Bradley Hammill (Presenter)
Duke Clinical Research Institute

Jeffrey Brown (Presenter)
Harvard Pilgrim Health Care Institute

Lesley Curtis (Presenter)
Duke Clinical Research Institute

Presentation Materials:

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