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Description

Abstract: iCONCUR (informed CONsent for clinical data and biosample Use for Research) is a web-based consent management system that allows patients to indicate their data sharing preferences in a tiered manner (https://ctri-iconcur.ucsd.edu). We are currently revising iCONCUR based on the lessons learned from a pilot study and will test it with a larger sample of patients recruited from the two academic health systems. During this study period, the sharing preferences of participating patients will be honored – i.e., data that they do not wish to share will be excluded from the datasets prepared for researchers.

Learning Objective 1: The learning objective for this poster is to discuss the process by which an online informed consent management system for data sharing choices operates and interacts with the EHR.

Authors:

Elizabeth Bell (Presenter)
UCSD

Diana Guijarro, UCSD
Imho Jang, UCSD
Wenhong Zhu, UCSD
Tyler Bath, UCSD
Gwangnoh Yun, UCSD
Masud Rahman, UCSD
chao jiang, UCSD
Xiaoqian Jiang, UCSD
Lucila Ohno-Machado, UCSD
Hyeoneui Kim, UCSD

Presentation Materials:

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